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Compunding Chemist > Compunding Pharmacist Resources >

Rare Disorders

Total Number of Links in this Category: 8

Welcome to the Rare Disorders resources page. If you can't find the Rare Disorders information you are looking for, try navigating through to another category - some listings are shown in more than one place. If you still can't find the information on Rare Disorders that you want, please email us at Roper and Parry, and we will endeavour to help track it down for you.

Lymphangiomatosis and Gorhams Vanishing Bone Disease
Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Human Growth Foundation Home Page
helping adults and parents of children with disorders of growth and growth hormone through research, education, support, and advocacy
Information Centre for Rare Diseases and Orphan Drugs: News
Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
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The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpected content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
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